Alzheimer's Respite & Resource
P.O. Box 22330
117 William Hilton Hwy.
Hilton Head Island SC 29925-2330
Contact Information
Organization DBA (Doing Business As)
Organization DBA
Memory Matters
Address P.O. Box 22330
117 William Hilton Hwy.
Hilton Head Island, SC 299252330
Telephone (843) 842-6688
Fax (843) 681-5522
E-mail info@memory-matters.org
Projected Annual Revenue $843,540.00 (2016)
Mission Statement Memory Matters is a local not-for-profit center of excellence which improves the quality of life for persons with dementia and their families, providing resources, support, respite and adult day services with compassion and dignity.
Leadership
CEO/Executive Director Edwina Hoyle
Board Chair Sarah Coffin
Board Chair Company Affiliation Retired
History and Background
Year of Incorporation 1997
Former Names
NameYear
AR&R2008
Financial Summary
Revenue vs Expenses Bar Graph - All Years
Graph: Expense Breakdown Graph - All Years
Revenue vs Expenses Area Graph - All Years

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission Memory Matters is a local not-for-profit center of excellence which improves the quality of life for persons with dementia and their families, providing resources, support, respite and adult day services with compassion and dignity.
Background Founded in 1997 as "Alzheimer's Respite & Resource" to serve families who struggle with the 24/7 care of loved ones with Alzheimer's disease. We started a respite daycare program one day a week.  Since then we have grown to meet the growing demand for services and now offer a full service, dementia-specific daycare 5 days a week.  In addition, we offer 8 support groups each month for caregivers, one-on-one counseling, crisis management, hotline, and education, resources and referrals. In 2009 we completed a capital campaign and moved into a state of the art facility.
Impact

We are one of the first communities to join a global initiative called the Purple Angel Project whose mission is to create dementia-friendly communities across the planet.  The goal is offer businesses, churches and organizations employee sensitivity training about dementia and how to better serve this growing population to allow them to feel more welcomed and supported in their community.  We are one of the first programs in the U.S.   We were also honored as the 2014 Organization of the Year by the Chamber of Commerce. The award states: "How we care for others in need defines who we are as individuals and as a community. This organization reflects the best of mankind with its kindness and respect for those who face the daunting task of caring for others."   We were also the subject of a PBS Documentary called "Visionaries,"  chosen from among hundreds of non-profits because of  our "exemplary work and a replicable model."  We have added a new program called Connections, designed for those with a new diagnosis of dementia to address the needs of those with mild dementia who are still highly functioning and able to be proactive and do not want to be defined by their disease.

 
Needs

We are volunteer-driven and always welcome new volunteers.  Unrestricted funding is extremely important as well.  Our annual budget approximates $800,000 and general operating support is always needed.  Ambassadors in the community who understand the special needs of those with dementia and their caregivers are appreciated.  Almost everyone knows someone with dementia, so caring individuals who can refer to Memory Matters as a resource for these families is critical.  Advocacy for research and the quest for a cure is paramount. Awareness is the first step...but lawmakers and other policymakers need to address the need to find a cure. 
 

CEO/Executive Director Statement We offer specialized care and individualized attention for our clients. Our dementia-specific daycare program is founded in dignity and compassion. Our goal is to enrich the quality of life of the participants, focusing on abilities, not disabilities; successes, not failures.  Memory Matters' staff and trained volunteers recognize and respect the rich diversity of the lives of those in our care.  Caregivers have peace of mind, safe in the knowledge that their loved ones are receiving the best care possible. Our program concentrates on activities designed to stimulate mind and body, encourage socialization, and combat depression. In addition to serving the needs of our clients, we also are a resource to the community and offer specialized trainings and presentations. 
Board Chair Statement

I joined Memory Matters in 2011 after serving with other local non-profit organizations. My own family members suffer from dementia so I had first-hand knowledge of the burden placed upon family caregivers. Memory Matters is an organization that helps families, both individuals with various forms of dementia, and the caregivers. Since joining the board in 2011 and becoming President in 2014. I have seen the organization grow in both numbers of families served, and massive growth in the education and support of caregivers, those diagnosed with early signs of dementia, and the public at large. I am especially proud that the PGA Tour honored us as the 2013 national Non-Profit of the Year and the Chamber of Commerce named us Organization of the Year in 2014. Our community sees our successes and our continued growth to meet the needs of the local aging population. We face the challenge of prudent growth in both physical facilities and trained, dedicated staff. We are dedicated to meeting this challenge.  As a community with an increasing average age of residents we face the challenge of prudent growth in both physical facilities and trained, dedicated staff. We are dedicated to meeting this challenge and will continue to serve our community to the best of our ability. 


CEO/Executive Director/Board Comments Our goal is to be a center of excellence in dementia care, as well as a leader in helping to create a dementia-friendly community through education and our newest initiative, the Purple Angel Project.  This global initiative recognizes the growing number of adults who will be impacted by dementia as Baby Boomers come of age. This silver tsunami will truly test our healthcare system. We are partnering with the business community to ensure that those dealing with dementia are able to maintain independence, be supported and welcome in businesses, and to improve the confidence of employees in dealing with their customers who may appear confused or lost.
Areas of Service
Area
Local
Beaufort County
Jasper County
Service area includes Beaufort and Jasper Counties in South Carolina
Board Chair
Board Chair Sarah Coffin
Company Affiliation Retired
Term Jan 2016 to Dec 2017
Email srcoffin@aol.com
Board of Directors
NameAffiliation
Sarah Coffin Retired
Curtis Coltrane Esq.Coltrane & Wilkins
Ann Conlon
Michael Cooke Retired and Community Volunteer
Dr. Charles Duvall retired
Bryce Edwards retired
David Ekedahl No Affiliation
Renee Ford Beaufort County
Michael Harter Retired
Rose Jackson-Knighton South State Bank
Mary Ella Jones Retired
Volker Kettering Retired and Community Volunteer
Monte Leath Accountant (self-employed)
Sharon Miller
Steven Miller Webster Rogers Public Accountants
Dennis Nelson Hilton Head Island Rotary Club
Laura "Jo" Nuce
David Rose No Affiliation
Robert Rutherford No Affiliation
Paula Scanlon Retired
Chip Simons Wells Fargo
Paul Wexler Retired and Community Volunteer
Brad Wilson Charter One Realty
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 22
Hispanic/Latino 0
Native American/American Indian 0
Board Demographics - Gender
Male 15
Female 8
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 90%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 5%
Number of Full Board Meetings Annually 9
Standing Committees
Board Governance
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Executive
Finance
Human Resources / Personnel
Marketing
Program / Program Planning
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Strategic Planning / Strategic Direction
Operations
Additional Board Members
NameAffiliation
Peter deHebreard Retired
Other Boards
The tables below contain information about other groups that advise this nonprofit on operations and projects.
Comments
We strive to excel at all levels, including governance.  We received the 2012 Award for Excellence in Non-Profit Management from the South Carolina Association of Non Profit Organizations (SCANPO); and we zealously apply the Guiding Principles and Best Practices developed by SCANPO.
Executive Director
Executive Director/CEO Edwina Hoyle
Experience Edwina Hoyle is a native of Pittsburgh, PA and a graduate of Marquette University. She has over 20 years experience working in the non-profit sector.
Former Executive Director/CEOs
NameTerm
Lynn Johnson Jan 1997 - Dec 1997
Elaine Winters Jan 1998 - Nov 2004
Senior Staff
NameTitle
Karen Doughtie Assistant Director
Staff
Full Time Staff 7
Part Time Staff 0
Volunteers 70
Contractors 1
Retention Rate 89%
Plans
Organization has a Strategic Plan? Yes
Date Strategic Plan Adopted Jan 2014
Years Strategic Plan Considers 3
Organization has a Fundraising Plan? No
Management Succession Plan? Yes
Organization Policy and Procedures Yes
Diversity Policy Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Collaborations
We have collaborations with all area home health care agencies, assisted living facilities, memory care units, the Palmetto Chapter of the Alzheimer's Association, local neurologists, hospice care agencies, and the Alzheimer's Foundation of America
Affiliations
AffiliationYear
AFP (Association of Fundraising Professionals)2015
Chamber of Commerce2004
Awards
Awards
Award/RecognitionOrganizationYear
Outstanding Organization of the YearHilton Head/Bluffton Chamber of Commerce2009
Erin Hardwick Award for Excellence in Non-Profit ManagementSouth Carolina Association of Nonprofit Organizations2012
Angel CharitySouth Carolina Secretary of State-Mark Hammond2004
Documentary on Memory Matters for program excellenceVisionaries, Inc. for PBS2013
Met Life Cure for Alzheimer's-short film documentary on Memory MattersMetLife Foundation2013
Outstanding Organization of the YearHilton Head/Bluffton Chamber of Commerce2014
Programs
Description A "failure-free" zone for those with Alzheimer's or any type of dementia in which their abilities, not their disabilities, are emphasized. This program offers music and art therapy, stimulating games, pet therapy, socialization, and hot meals--all delivered with dignity and compassion.
Short Term Success
Long Term Success We are able to care for our clients until they are physically incapacitated, deceased, or placed into a residential facility. The length of time in our program is testament to its success.
Description We offer several support groups that offer family caregivers a safe and confidential venue to share concerns and get powerful tools for their caregiver toolkits. We offer a mixed gender group, a male caregiver group, a support group for those caring for Young Onset Alzheimer's (65 years or younger), and a transitional bereavement group.
Short Term Success
Long Term Success
Description Optimize your brain with a 10-week class that focuses on maintaining brain health. With over 500 million synaptic connections, the brain is the most powerful machine in the world. This class teaches techniques to improve brain function and memory and how to focus on life style changes to keep healthy.
Short Term Success
Long Term Success
Description A cutting edge program for those recently diagnosed with memory problems who are living independently and who wish to take a proactive approach to managing their disease. This program is for people who do not wish to be defined by their disease, and who want socialization, stimulation and good tools for their toolkits.
Short Term Success
Long Term Success This program has just been initiated in Jan. 2014. We are using software and technology that is cutting edge and includes 4,000 programs.
Description We are part of an global initiative to create a dementia-friendly community in which businesses, residents and service providers receive sensitivity training to better support those with dementia.  Memory Matters provides employee training on how to recognize signs of dementia and how to better respond to their clients' needs.  See www.purpleangelproject.org for more information.
Budget 50000
Short Term Success Our goal is to provide free, on-site employee sensitivity training on dementia to area businesses.  100% of those trained will experience improved customer service--not only for those with dementia, but for all customers.  Employees will have more confidence in dealing with customers/clients with dementia as well.
Long Term Success Our community will become one of the 1st dementia-friendly communities in the U.S.  The growing number of adults affected by dementia will benefit from education and awareness and will feel supported and welcomed by area businesses and services.  The veil of ignorance and the stigma associated with the disease will be lifted. 
Strategy Yes
Program Success Monitored BY Follow-up interviews with companies.  Evaluations of the training.
Fiscal Year
Fiscal Year 2016
Projected Revenue $843,540.00
Projected Expenses $915,900.00
Endowment Value $190,199.00
Spending Policy Income Only
Percentage (if selected) 5
IRS Letter of Exemption
Detailed Financials
Expense Allocation
Fiscal Year201520142013
Program Expense------
Administration Expense------
Fundraising Expense------
Payments to Affiliates------
Total Revenue/Total Expenses0.971.251.21
Program Expense/Total Expenses0%0%0%
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201520142013
Total Assets------
Current Assets------
Long-Term Liabilities------
Current Liabilities------
Total Net Assets------
Short Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities------
Long Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets------
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? Yes
State Charitable Solicitations Permit
Registration Yes May 2017
Nonprofit Alzheimer's Respite & Resource
Address P.O. Box 22330
117 William Hilton Hwy.
Hilton Head Island, SC 299252330
Primary Phone (843) 842-6688
Contact Email info@memory-matters.org
CEO/Executive Director Edwina Hoyle
Board Chair Sarah Coffin
Board Chair Company Affiliation Retired
Year of Incorporation 1997
Former Names
AR&R