Alzheimer's Respite & Resource
P.O. Box 22330
117 William Hilton Hwy.
Hilton Head Island SC 29925-2330
Contact Information
Organization DBA (Doing Business As)
Organization DBA
Memory Matters
Address P.O. Box 22330
117 William Hilton Hwy.
Hilton Head Island, SC 299252330
Telephone (843) 842-6688 1014
Fax (843) 681-5522
E-mail jan@memory-matters.org
Projected Annual Revenue $1,257,729.00 (2018)
Web and Social Media
Video https://www.bing.com/videos/search?q=memory+matters+hhi+sc+youtube&view=detail&mid=C5B2497908E719CC3A01C5B2497908E719CC3A01&FORM=VIRE
Mission Statement

The mission of Memory Matters (MM) has been, since its founding in 1997, to provide high-quality professional services that help adults diagnosed with Alzheimer’s, and similar dementia diseases, remain safely in their homes and communities. To accomplish this mission, its primary service offers 5-hour adult social day programs four days a week for participants exhibiting mild- to moderate-level memory impairment. Participants enjoy a happy and healthy brain day while their caregivers receive crucial respite. Additionally, caregivers are assisted, through education, support groups and private counseling, with the difficult task of managing loved ones at home.

A newly adopted vision for 2018 is to “optimize brain wellness” for the greater Lowcountry community. Memory Matters is investing in proactive education regarding brain health and awareness to potentially head off, or at least mitigate, the onset of Alzheimer's disease.

Memory Matters is happy to be named a South Carolina Angel Charity.

Leadership
CEO/Executive Director Sheila C Strand
Board Chair Michael Cooke
Board Chair Company Affiliation Retired Business Executive
History and Background
Year of Incorporation 1997
Former Names
NameYear
AR&R2008
Financial Summary
Revenue vs Expenses Bar Graph - All Years
Graph: Expense Breakdown Graph - All Years
Revenue vs Expenses Area Graph - All Years

Comparing revenue to expenses shows how the organizations finances fluctuate over time.

Source: IRS Form 990

 Breakdown
Net Gain/Loss:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.
Statements
Mission

The mission of Memory Matters (MM) has been, since its founding in 1997, to provide high-quality professional services that help adults diagnosed with Alzheimer’s, and similar dementia diseases, remain safely in their homes and communities. To accomplish this mission, its primary service offers 5-hour adult social day programs four days a week for participants exhibiting mild- to moderate-level memory impairment. Participants enjoy a happy and healthy brain day while their caregivers receive crucial respite. Additionally, caregivers are assisted, through education, support groups and private counseling, with the difficult task of managing loved ones at home.

A newly adopted vision for 2018 is to “optimize brain wellness” for the greater Lowcountry community. Memory Matters is investing in proactive education regarding brain health and awareness to potentially head off, or at least mitigate, the onset of Alzheimer's disease.

Memory Matters is happy to be named a South Carolina Angel Charity.

Background

Memory Matters had a very modest beginning  20 years ago (1997) in two churches, St. Luke's on Pope Avenue, Hilton Head, Gregory the Great in Bluffton. The Memory Care Specialist was traveling back and forth continually packing up her brain activity bag and going to the next church, to meet the needs of caregivers. The focus in 1997 was on providing caregivers of those suffering with Alzheimer's a respite form their grueling 24/7 commitment. The need for a common location was evident after a while, and a capital campaign was started in 2008. Successfully raising funds to remodel a permanent home, Memory Matters staff moved in to the home on 117 William Hilton Parkway, HHI in 2009. Ever since, the programs and support have skyrocketed to what it is today. Seeing is believing. One must visit to take in the amazing happenings at Memory Matters!

Impact

We are one of the first communities to join a global initiative called the Purple Angel Project whose mission is to create dementia-friendly communities across the planet.  The goal is offer businesses, churches and organizations employee sensitivity training about dementia and how to better serve this growing population to allow them to feel more welcomed and supported in their community.  We are one of the first programs in the U.S.   We were also honored as the 2014 Organization of the Year by the Chamber of Commerce. The award states: "How we care for others in need defines who we are as individuals and as a community. This organization reflects the best of mankind with its kindness and respect for those who face the daunting task of caring for others."   We were also the subject of a PBS Documentary called "Visionaries,"  chosen from among hundreds of non-profits because of  our "exemplary work and a replicable model."  We have added a new program called Connections, designed for those with a new diagnosis of dementia to address the needs of those with mild dementia who are still highly functioning and able to be proactive and do not want to be defined by their disease.

 
Needs

We are volunteer-driven and always welcome new volunteers.  Unrestricted funding is extremely important as well.  Our annual budget approximates $1.2mil, a modest budget considering the magnitude of support to the community. General operating support is always needed.  Ambassadors in the community who understand the special needs of those with dementia and their caregivers are appreciated.  Almost everyone knows someone with dementia, so caring individuals who can refer to Memory Matters as a resource for these families is critical.  Advocacy for research and the quest for a cure is paramount. Awareness is the first step...but lawmakers and other policymakers need to address the need to find a cure. 
 

CEO/Executive Director Statement We offer specialized care and individualized attention for our clients. Our dementia-specific daycare program is founded in dignity and compassion. Our goal is to enrich the quality of life of the participants, focusing on abilities, not disabilities; successes, not failures.  Memory Matters' staff and trained volunteers recognize and respect the rich diversity of the lives of those in our care.  Caregivers have peace of mind, safe in the knowledge that their loved ones are receiving the best care possible. Our program concentrates on activities designed to stimulate mind and body, encourage socialization, and combat depression. In addition to serving the needs of our clients, we also are a resource to the community and offer specialized trainings and presentations. 
Board Chair Statement


I am a retired senior executive with over 40 years of experience including: general management, marketing and sales, and business consultancy in diverse global markets.


 


Born just south east of London, England, I completed a five-year engineering apprenticeship with Molins plc, a British technology company before they invited him to pursue a career in international sales and marketing.


 


After moving to HHI and since retiring I have become a passionately committed Brain Wellness and Memory Care volunteer first then being asked to be on the golf tournament committe, as well as Board member, serving Memory Matters on Hilton Head Island and the Lowcountry community.  My Memory Matters weekly blog can be found at www.volunteermike.com.


I prefers to focus all his attention on one volunteering opportunity rather than spread himself more thinly, and in so doing he hopes to make a significant difference to the people he serves. In truth Memory Matters has given him a new direction in life and he finds his Memory Matters roles, stimulating, enjoyable and rewarding.


My mother suffered from Alzheimer’s and it is a near and dear cause, especially with the amazing staff at Memory Matters


CEO/Executive Director/Board Comments Our goal is to be a center of excellence in dementia care, as well as a leader in helping to create a dementia-friendly community through education and our newest initiative, the Purple Angel Project.  This global initiative recognizes the growing number of adults who will be impacted by dementia as Baby Boomers come of age. This silver tsunami will truly test our healthcare system. We are partnering with the business community to ensure that those dealing with dementia are able to maintain independence, be supported and welcome in businesses, and to improve the confidence of employees in dealing with their customers who may appear confused or lost.
Areas of Service
Area
Local
Beaufort County
Jasper County
Service area includes Beaufort, Jasper and near-in Hampton Counties in South Carolina
Board Chair
Board Chair Michael Cooke
Company Affiliation Retired Business Executive
Term Jan 2018 to Dec 2020
Email micbri1@gmail.com
Board of Directors
NameAffiliation
George Bafundo Retired
Sarah Coffin Retired
Michael Cooke Retired and Community Volunteer
Dr. Charles Duvall retired
Bryce Edwards retired
Linda Fiore Retired
Renee Ford Beaufort County
Craig Gilmour Financial Advisor
Michael Harter Retired
Mary Ella Jones Retired
Rose Kearney-Nunnery Retired
Drew Laughlin Retired
Ken Meyer Retired
Steven Miller Webster Rogers Public Accountants
Paula Scanlon Retired
Bill Sheridan Retired
Chip Simons Wells Fargo
Paul Wexler Retired and Community Volunteer
Lynette Wigfall Counselor, LPC
Brad Wilson Charter One Realty
Board Demographics - Ethnicity
African American/Black 2
Asian American/Pacific Islander 0
Caucasian 18
Hispanic/Latino 0
Native American/American Indian 0
Board Demographics - Gender
Male 13
Female 7
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 75%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 15%
Number of Full Board Meetings Annually 9
Standing Committees
Board Governance
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Executive
Finance
Program / Program Planning
Operations
Communications / Promotion / Publicity / Public Relations
Additional Board Members
NameAffiliation
Peter deHebreard Retired
Other Boards
The tables below contain information about other groups that advise this nonprofit on operations and projects.
Comments
We strive to excel at all levels, including governance.  We received the 2012 Award for Excellence in Non-Profit Management from the South Carolina Association of Non Profit Organizations (SCANPO); and we zealously apply the Guiding Principles and Best Practices developed by SCANPO.
Executive Director
Executive Director/CEO Sheila C Strand
Experience

Sheila Strand, Executive Director of Memory Matters, brings national, regional and local nonprofit health care management experience to her role.  Over her 37-year career, she successfully worked with boards of directors and management in strategic planning, organizational growth strategy, business development, branding and marketing. In addition to her senior position at Memory Matters, Strand has been an executive at nonprofits in Kansas City, Houston, and Washington, DC. Strand holds a master’s degree from The Johns Hopkins University, and a bachelor’s degree from Drake University.  She joined Memory Matters in January 2017.


Former Executive Director/CEOs
NameTerm
Edwina Hoyle Jan 2005 - Dec 2016
Elaine Winters Jan 1998 - Nov 2004
Senior Staff
NameTitle
Karen Doughtie Assistant Director
Staff
Full Time Staff 12
Part Time Staff 0
Volunteers 102
Contractors 0
Retention Rate 90%
Plans
Organization has a Strategic Plan? Yes
Date Strategic Plan Adopted Jan 2017
Years Strategic Plan Considers 2
Organization has a Fundraising Plan? Yes
Management Succession Plan? Yes
Organization Policy and Procedures Yes
Diversity Policy Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Collaborations
We have collaborations with all area home health care agencies, assisted living facilities, memory care units, the Palmetto Chapter of the Alzheimer's Association, local neurologists, hospice care agencies, and the Alzheimer's Foundation of America
Affiliations
AffiliationYear
AFP (Association of Fundraising Professionals)2015
Chamber of Commerce2004
Awards
Awards
Award/RecognitionOrganizationYear
Outstanding Organization of the YearHilton Head/Bluffton Chamber of Commerce2009
Erin Hardwick Award for Excellence in Non-Profit ManagementSouth Carolina Association of Nonprofit Organizations2012
Angel CharitySouth Carolina Secretary of State-Mark Hammond2004
Documentary on Memory Matters for program excellenceVisionaries, Inc. for PBS2013
Met Life Cure for Alzheimer's-short film documentary on Memory MattersMetLife Foundation2013
Outstanding Organization of the YearHilton Head/Bluffton Chamber of Commerce2014
Programs
Description A "failure-free" zone for those with Alzheimer's or any type of dementia in which their abilities, not their disabilities, are emphasized. This program offers music and art therapy, stimulating games, pet therapy, socialization, and hot meals--all delivered with dignity and compassion.
Short Term Success
Long Term Success We are able to care for our clients until they are physically incapacitated, deceased, or placed into a residential facility. The length of time in our program is testament to its success.
Description We offer several support groups that offer family caregivers a safe and confidential venue to share concerns and get powerful tools for their caregiver toolkits. We offer a mixed gender group, a male caregiver group, a support group for those caring for Young Onset Alzheimer's (65 years or younger), and a transitional bereavement group.
Short Term Success
Long Term Success
Description Optimize your brain with a 10-week class that focuses on maintaining brain health. With over 500 million synaptic connections, the brain is the most powerful machine in the world. This class teaches techniques to improve brain function and memory and how to focus on life style changes to keep healthy.
Short Term Success
Long Term Success
Description A cutting edge program for those recently diagnosed with memory problems who are living independently and who wish to take a proactive approach to managing their disease. This program is for people who do not wish to be defined by their disease, and who want socialization, stimulation and good tools for their toolkits.
Short Term Success
Long Term Success This program has just been initiated in Jan. 2014. We are using software and technology that is cutting edge and includes 4,000 programs.
Description We are part of an global initiative to create a dementia-friendly community in which businesses, residents and service providers receive sensitivity training to better support those with dementia.  Memory Matters provides employee training on how to recognize signs of dementia and how to better respond to their clients' needs.  See www.purpleangelproject.org for more information.
Budget $50,000.00
Short Term Success Our goal is to provide free, on-site employee sensitivity training on dementia to area businesses.  100% of those trained will experience improved customer service--not only for those with dementia, but for all customers.  Employees will have more confidence in dealing with customers/clients with dementia as well.
Long Term Success Our community will become one of the 1st dementia-friendly communities in the U.S.  The growing number of adults affected by dementia will benefit from education and awareness and will feel supported and welcomed by area businesses and services.  The veil of ignorance and the stigma associated with the disease will be lifted. 
Strategy Yes
Program Success Monitored BY Follow-up interviews with companies.  Evaluations of the training.
Fiscal Year
Fiscal Year 2018
Projected Revenue $1,257,729.00
Projected Expenses $1,234,940.00
Spending Policy Income Only
Percentage (if selected) 5
IRS Letter of Exemption
Detailed Financials
Expense Allocation
Fiscal Year201620152014
Program Expense$711,920----
Administration Expense$93,419----
Fundraising Expense$121,107----
Payments to Affiliates------
Total Revenue/Total Expenses1.090.971.25
Program Expense/Total Expenses77%0%0%
Fundraising Expense/Contributed Revenue16%----
Assets and Liabilities
Fiscal Year201620152014
Total Assets$2,674,865----
Current Assets$293,203----
Long-Term Liabilities------
Current Liabilities$637----
Total Net Assets$2,674,228----
Short Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities460.29----
Long Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%----
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar Amount -- -- --
Second Highest Funding Source & Dollar Amount -- -- --
Third Highest Funding Source & Dollar Amount -- -- --
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? Yes
State Charitable Solicitations Permit
Registration Yes May 2017
Nonprofit Alzheimer's Respite & Resource
Address P.O. Box 22330
117 William Hilton Hwy.
Hilton Head Island, SC 299252330
Primary Phone (843) 842-6688 1014
Contact Email jan@memory-matters.org
CEO/Executive Director Sheila C Strand
Board Chair Michael Cooke
Board Chair Company Affiliation Retired Business Executive
Year of Incorporation 1997
Former Names
AR&R